SSPE (Subacute Sclerosing Panencephalitis ? is a fatal form of progressive brain inflammation caused by persistent infection with the measles virus. It primarily affects children, teenagers, and young adults. It is important to note that SSPE is caused by the wild-type measles virus and not by vaccine strains. This condition is a severe, fatal post-measles complication.
Symptoms of SSPE include:
• A history of measles infection followed by an asymptomatic period, which typically lasts around 7 years.
• Progressive neurological deterioration, which manifests as behavior changes, intellectual decline, myoclonic seizures, blindness, and ataxia.
• Further progression leads to loss of consciousness, a vegetative state, paralysis, and disturbances in vital functions (breathing, heart rate, and blood pressure), ultimately resulting in death.

Currently there is no treatment or vaccine to this. I would like to know are there any children’s or families with this conditions.. I want to connect with that family and understand how are they managing ?

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